Vascular malformations—what are they?

Instead of forming neat tubes, the blood and lymph vessels develop into twisted webs that collect fluid, forming large cysts. These masses are non-malignant but deforming, and they compress the normal anatomy around them. The main treatment is surgery, which frequently harms the healthy tissue as much as it helps remove the malformation.

   
Winston before surgery

The Hyman-Newman Institute for
Neurology and Neurosurgery

Under the direction of Dr. Alejandro Berenstein at Roosevelt Hospital in New York City, the Hyman-Newman Institute for Neurology and Neurosurgery (INN) is a leader in development and application of new treatments for these vascular diseases. The team's innovative non-surgical techniques have dramatic results. These techniques, combined with the team's pediatric focus and wonderful care, attract patients from all over the country and the world.

Support One Family

These new techniques are exciting, but access is limited to families who can afford to travel to New York City and have excellent medical coverage. Support One Family is a fund within the not-for-profit St Luke's-Roosevelt Hospital. Money raised by SOF helps cover the astronomical costs of getting these children and their families to treatment in New York, including travel, lodging, meals, and medical costs.

   
Lyra before treatment with her sister Anya

How you can help

You can donate securely to Support One Family via PayPal or on the Roosevelt Hospital website, or you can participate in one of our fundraisers in the Albany area. Thank you for your concern!

If you have any questions, please send us an e-mail at supportonefamily@hotmail.com.